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Piia Bartos<p>My word assumes biobank can be hyphenated as bi-obank.</p><p>Hello, all my fellow bi-obanks.</p><p><a href="https://mastodontti.fi/tags/word" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>word</span></a> <a href="https://mastodontti.fi/tags/obank" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>obank</span></a> <a href="https://mastodontti.fi/tags/biobank" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>biobank</span></a> <a href="https://mastodontti.fi/tags/hyphenation" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hyphenation</span></a></p>
David Tuller<p><strong>Professor Chris Ponting on “Replicated Blood-Based Biomarkers” for ME in Big Data Pre-Print Study</strong></p><p>By David Tuller, DrPH</p><p>Along with several colleagues, <a href="https://www.ed.ac.uk/profile/chris-ponting" rel="nofollow noopener noreferrer" target="_blank">Professor Chris Ponting</a>, a geneticist at the University of Edinburgh and a leading ME/CFS researcher, recently posted <a href="https://www.medrxiv.org/content/10.1101/2024.08.26.24312606v2" rel="nofollow noopener noreferrer" target="_blank">a pre-print</a> called <em>“Replicated blood-based biomarkers for Myalgic Encephalomyelitis not explicable by inactivity.”</em> &nbsp;(A pre-print is a paper that has not yet been formally peer-reviewed.) For this analysis, the investigators examined data for more than 3,000 molecular and cellular traits in samples from the UK Biobank, including from 1,455 ME cases and 131,303 controls. They found 116 traits that were significant among both female and male ME patients. </p><p>Earlier today, I spoke about the study with Professor Ponting, who is also the lead investigator for <a href="https://www.decodeme.org.uk/" rel="nofollow noopener noreferrer" target="_blank">DecodeME</a>, a major genome-wide association study of ME/CFS.</p> <p><a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://trialbyerror.org/tag/biobank/" target="_blank">#biobank</a></p>
Lukas VFN 🇪🇺<p>Biobanking <a href="https://scholar.social/tags/Corals" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Corals</span></a>: One Woman’s Mission to Save Coral Genetics in <a href="https://scholar.social/tags/TurksAndCaicos" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>TurksAndCaicos</span></a> to Rebuild <a href="https://scholar.social/tags/Reefs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Reefs</span></a> of the Future <a href="https://insideclimatenews.org/news/15102024/saving-coral-genetics-in-turks-and-caicos-to-rebuild-reefs-of-the-future/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">insideclimatenews.org/news/151</span><span class="invisible">02024/saving-coral-genetics-in-turks-and-caicos-to-rebuild-reefs-of-the-future/</span></a> </p><p>"Alizee Zimmermann saw corals dying en masse and built a living bank to hold corals on land... Nearly 200 coral colonies are housed in this lab serving as a <a href="https://scholar.social/tags/biobank" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>biobank</span></a> for some of the most vulnerable reef-building species at-risk of extinction due to <a href="https://scholar.social/tags/ClimateChange" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ClimateChange</span></a> and disease in the <a href="https://scholar.social/tags/Atlantic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Atlantic</span></a> Ocean and the <a href="https://scholar.social/tags/Caribbean" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Caribbean</span></a>."</p>
Tom Kindlon<p>Australia:</p><p>If you’re living with ME/CFS, Long COVID or want to volunteer as a ‘healthy control’ for medical research studies, signing up and becoming an AusME Registry participant is the single easiest way to become involved in research! Learn more today </p><p><a href="https://vist.ly/3b4pb" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="">vist.ly/3b4pb</span><span class="invisible"></span></a> <a href="https://disabled.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mecfs</span></a> </p><p><a href="https://disabled.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <a href="https://disabled.social/tags/myalgicencphalopmyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>myalgicencphalopmyelitis</span></a> <a href="https://disabled.social/tags/chronicfatiguesyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicfatiguesyndrome</span></a> <a href="https://disabled.social/tags/invisibleillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>invisibleillness</span></a> <a href="https://disabled.social/tags/chronicfatigue" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicfatigue</span></a> <a href="https://disabled.social/tags/mecfsawarenss" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mecfsawarenss</span></a> <a href="https://disabled.social/tags/me" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>me</span></a> <a href="https://disabled.social/tags/longcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longcovid</span></a> <a href="https://disabled.social/tags/biobank" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>biobank</span></a> <a href="https://disabled.social/tags/registry" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>registry</span></a> <a href="https://disabled.social/tags/AusME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>AusME</span></a> <br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/auscovid19" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>auscovid19</span></a></span> <a href="https://disabled.social/tags/auscovid19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>auscovid19</span></a></p>
Laborjournal<p>Nach 10 Jahren steht der German <a href="https://mstdn.science/tags/Biobank" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Biobank</span></a> Node so gut da wie nie – mit akademischen humanen Biobanken an 36 Uni-Standorten. Jetzt muss dessen langfristige Finanzierung gesichert werden … — Karin Lauschke berichtet mehr: <a href="https://www.laborjournal.de/editorials/2960.php" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">laborjournal.de/editorials/296</span><span class="invisible">0.php</span></a></p>
NFDI4Immuno<p>🔭 <a href="https://nfdi.social/tags/LegislativeObservatory" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LegislativeObservatory</span></a>: The position of the <a href="https://nfdi.social/tags/EUCouncil" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>EUCouncil</span></a> on the <a href="https://nfdi.social/tags/EHDS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>EHDS</span></a> (European Health <a href="https://nfdi.social/tags/DataSpace" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>DataSpace</span></a>) is now also available:</p><p><a href="http://data.consilium.europa.eu/doc/document/ST-16048-2023-REV-1/EN/pdf" rel="nofollow noopener noreferrer" target="_blank"><span class="invisible">http://</span><span class="ellipsis">data.consilium.europa.eu/doc/d</span><span class="invisible">ocument/ST-16048-2023-REV-1/EN/pdf</span></a></p><p>Key differences from the Parliament's position on secondary use of <a href="https://nfdi.social/tags/HealthData" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>HealthData</span></a> are 1) no required opt-in for "genetic" data, but member states may impose additional restrictions [Art. 33 (5)]; 2) "other human molecular data" (Omics data) [Art. 33 (1) lit. ea] are treated equally to "genetic" data and need opt-in and 3) no opt-in for <a href="https://nfdi.social/tags/Biobank" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Biobank</span></a> data.</p>
NFDI4Immuno<p>🔭 <a href="https://nfdi.social/tags/LegislativeObservatory" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LegislativeObservatory</span></a>: <a href="https://nfdi.social/tags/EuropeanParliament" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>EuropeanParliament</span></a> has just voted in favor of the <a href="https://nfdi.social/tags/EHDS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>EHDS</span></a> (European Health <a href="https://nfdi.social/tags/DataSpace" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>DataSpace</span></a>) compromise version of <a href="https://nfdi.social/tags/ENVI" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ENVI</span></a> and <a href="https://nfdi.social/tags/LIBE" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LIBE</span></a> , rejecting further amendments (ex. 555):</p><p><a href="https://www.europarl.europa.eu/doceo/document/A-9-2023-0395_EN.html" rel="nofollow noopener noreferrer" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">europarl.europa.eu/doceo/docum</span><span class="invisible">ent/A-9-2023-0395_EN.html</span></a></p><p>Relevant changes for secondary use of <a href="https://nfdi.social/tags/HealthData" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>HealthData</span></a> are 1) an opt-in requirement for sharing of genetic and <a href="https://nfdi.social/tags/biobank" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>biobank</span></a> data (Art. 33 (5a), Rec. 39a) and 2) allowing member states to impose further restrictions on data falling within Art. 9 <a href="https://nfdi.social/tags/GDPR" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>GDPR</span></a> (Rec. 3a). <a href="https://nfdi.social/tags/Trilog" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Trilog</span></a> will start tomorrow!</p>
Dr. Samuel Wein<p><span class="h-card"><a href="https://techhub.social/@Techmeme" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>Techmeme</span></a></span><br>Everyone who approved this on the <a href="https://fediscience.org/tags/Biobank" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Biobank</span></a> side should be sacked immediately. The damage this does to the public trust in biomedical data collection is immense, not to mention the discrimination this allows the insurers to inflict.</p>
Victoria Stuart 🇨🇦 🏳️‍⚧️<p>Ancestral genetic components are consistently associated with the complex trait landscape in European biobanks<br><a href="https://www.biorxiv.org/content/10.1101/2023.10.04.560881v1" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">biorxiv.org/content/10.1101/20</span><span class="invisible">23.10.04.560881v1</span></a></p><p>The genetic structure in Europe was mostly shaped by admixture between the Western Hunter-Gatherer<br>...<br>Heart rate, platelet count, monocyte percentage and many other traits show stratification similar to height and pigmentation traits, likely targets of selection and divergence across ancestral groups.<br>...</p><p><a href="https://mastodon.social/tags/genomics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>genomics</span></a> <a href="https://mastodon.social/tags/GWAS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>GWAS</span></a> <a href="https://mastodon.social/tags/biobank" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>biobank</span></a> <a href="https://mastodon.social/tags/bioinformatics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>bioinformatics</span></a> <a href="https://mastodon.social/tags/genetics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>genetics</span></a></p>
Charité Berlin<p>Wie viel Pflege verträgt eigentlich die Haut? Was ist eine Biobank? Und wie lässt sich ein Gummibärchen minimalinvasiv operieren? Abseits vom Bühnenprogramm ist bei der <a href="https://wisskomm.social/tags/LNDW23" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LNDW23</span></a> an der <a href="https://wisskomm.social/tags/Charit%C3%A9Berlin" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CharitéBerlin</span></a> einiges los!</p><p><a href="https://wisskomm.social/tags/Medizin" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Medizin</span></a> <a href="https://wisskomm.social/tags/Wissenschaft" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Wissenschaft</span></a> <a href="https://wisskomm.social/tags/Biobank" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Biobank</span></a> <a href="https://wisskomm.social/tags/Haut" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Haut</span></a> <a href="https://wisskomm.social/tags/Wisskomm" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Wisskomm</span></a></p>
ECDC<p>RT @CYBiobank: MULTIPLIERS project hosted at <a href="http://biobank.cy" rel="nofollow noopener noreferrer" target="_blank"><span class="invisible">http://</span><span class="">biobank.cy</span><span class="invisible"></span></a>! </p><p>Students met our experts and engaged in authentic activities around the socio-scientific issue of antimicrobial resistance (AMR). </p><p>More: <a href="https://multipliers-project.org/a-mission-to-tackle-antimicrobial-resistance/" rel="nofollow noopener noreferrer" target="_blank"><span class="invisible">https://</span><span class="ellipsis">multipliers-project.org/a-miss</span><span class="invisible">ion-to-tackle-antimicrobial-resistance/</span></a> </p><p><a href="https://respublicae.eu/tags/EAAD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>EAAD</span></a> <br><a href="https://respublicae.eu/tags/biobankcy" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>biobankcy</span></a> <a href="https://respublicae.eu/tags/H2020" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>H2020</span></a> <a href="https://respublicae.eu/tags/EU2020" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>EU2020</span></a> <a href="https://respublicae.eu/tags/UCY" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>UCY</span></a> <a href="https://respublicae.eu/tags/biobank" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>biobank</span></a> <a href="https://respublicae.eu/tags/Cyprus" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Cyprus</span></a> </p><p> 🐦🔗: <a href="https://n.respublicae.eu/ECDC_EU/status/1600809670700322816" rel="nofollow noopener noreferrer" target="_blank"><span class="invisible">https://</span><span class="ellipsis">n.respublicae.eu/ECDC_EU/statu</span><span class="invisible">s/1600809670700322816</span></a></p>
Alex Silver<p>My initial <a href="https://mastodon.online/tags/introduction" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>introduction</span></a> was a bit sparse, so here are more areas where I engage: <a href="https://mastodon.online/tags/health" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>health</span></a> <a href="https://mastodon.online/tags/healthcare" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>healthcare</span></a> <a href="https://mastodon.online/tags/medicine" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>medicine</span></a> <a href="https://mastodon.online/tags/physicianscientist" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>physicianscientist</span></a> <a href="https://mastodon.online/tags/MDPhD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MDPhD</span></a> <a href="https://mastodon.online/tags/DoubleDocs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>DoubleDocs</span></a> <a href="https://mastodon.online/tags/science" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>science</span></a> <a href="https://mastodon.online/tags/research" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>research</span></a> <a href="https://mastodon.online/tags/academic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>academic</span></a> <a href="https://mastodon.online/tags/biology" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>biology</span></a> <a href="https://mastodon.online/tags/humandisease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>humandisease</span></a> <a href="https://mastodon.online/tags/aging" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>aging</span></a> <a href="https://mastodon.online/tags/hematology" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hematology</span></a> <a href="https://mastodon.online/tags/haematology" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>haematology</span></a> <a href="https://mastodon.online/tags/hematopoiesis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hematopoiesis</span></a> <a href="https://mastodon.online/tags/blood" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>blood</span></a> <a href="https://mastodon.online/tags/stemcells" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>stemcells</span></a> <a href="https://mastodon.online/tags/germline" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>germline</span></a> <a href="https://mastodon.online/tags/somaticgenetics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>somaticgenetics</span></a> <a href="https://mastodon.online/tags/mosaicism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mosaicism</span></a> <a href="https://mastodon.online/tags/mutation" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mutation</span></a> <a href="https://mastodon.online/tags/SNV" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SNV</span></a> <a href="https://mastodon.online/tags/mCA" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mCA</span></a> <a href="https://mastodon.online/tags/genetics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>genetics</span></a> <a href="https://mastodon.online/tags/genomics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>genomics</span></a> <a href="https://mastodon.online/tags/populationgenetics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>populationgenetics</span></a> <a href="https://mastodon.online/tags/AML" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>AML</span></a> <a href="https://mastodon.online/tags/MDS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MDS</span></a> <a href="https://mastodon.online/tags/MPN" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MPN</span></a> <a href="https://mastodon.online/tags/myeloid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>myeloid</span></a> <a href="https://mastodon.online/tags/ClonalHematopoiesis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ClonalHematopoiesis</span></a> <a href="https://mastodon.online/tags/CHIP" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CHIP</span></a> <a href="https://mastodon.online/tags/inflammation" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>inflammation</span></a> <a href="https://mastodon.online/tags/bonemarrow" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>bonemarrow</span></a> <a href="https://mastodon.online/tags/HSC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>HSC</span></a> <a href="https://mastodon.online/tags/biobank" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>biobank</span></a> <a href="https://mastodon.online/tags/molecularbiology" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>molecularbiology</span></a> <a href="https://mastodon.online/tags/geneediting" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>geneediting</span></a> <a href="https://mastodon.online/tags/CRISPR" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CRISPR</span></a> <a href="https://mastodon.online/tags/NGS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NGS</span></a></p>